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Join Us at Our Next Event

Stay updated on our upcoming events! At Oklahoma Rare, our events bring the rare disease community together  - to connect, learn, and advocate. Whether it’s gathering families for support, raising awareness at the Capitol, or creating opportunities to share resources, our events are designed to unite Oklahomans living with a rare condition and the people who care for them. Each event is a chance to build connections, amplify rare voices, and remind families that they are never alone.

  • May Oklahoma Rare Disease Coalition meeting
    May Oklahoma Rare Disease Coalition meeting
    Wed, May 06
    Virtual Meeting | Zoom
    May 06, 2026, 12:00 PM – 1:00 PM CDT
    Virtual Meeting | Zoom
  • Inaugural Oklahoma Rare Disease Fair
    Inaugural Oklahoma Rare Disease Fair
    Wed, Sep 30
    Bethany Children's Health Center
    Sep 30, 2026, 9:00 AM – 5:00 PM
    Bethany Children's Health Center, 6800 NW 39th Expy, Bethany, OK 73008, USA
    The NWRDC 2026 Oklahoma Rare Disease Fair aims to educate, engage, and inspire our community about the importance of rare disease research for all attendees - including patient advocates, patient organizations, pharma, biotech, government institutions, researchers, legislators, and payers.
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