Join Us at Our Next Event

Stay updated on our upcoming events! At Oklahoma Rare, our events bring the rare disease community together  - to connect, learn, and advocate. Whether it’s gathering families for support, raising awareness at the Capitol, or creating opportunities to share resources, our events are designed to unite Oklahomans living with a rare condition and the people who care for them. Each event is a chance to build connections, amplify rare voices, and remind families that they are never alone.