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Explore resources, programs, and organizations supporting Oklahoma's rare disease community. From financial assistance and healthcare education to local services and national support, we're here to help you find the information and connections you need. Let us know if you have a resource to add. We'll continue to add resources so be sure to check back!
We want to highlight a new partnership between Raregivers and Crisis Text Line that is expanding free, 24/7 mental health support for people living with rare, chronic, and complex diseases. If you or someone you love needs support, you can text “RARE” to 741741 (or “RARAS” for Spanish) to connect with a trained crisis counselor anytime. The service is free, confidential, and available 24/7. Resources like this matter. No one in the rare community should feel alone.
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