For the 395,000+ Oklahomans Living Rare
Oklahoma Rare is a community-driven organization created by and for those impacted by rare diseases. With more than 395,000 Oklahomans living with a rare condition, far too many families experience long diagnostic journeys, limited treatment options, and barriers to care and support.
We exist to change that. Oklahoma Rare provides a place for connection, resources, and advocacy - ensuring no one has to face the challenges of rare disease alone. We bring families, caregivers, and advocates together to share strength, raise awareness, and amplify the voices of our community at both the state and national level.
Together, we believe in building a future where every rare voice is heard, valued, and supported.
Our Mission
Our mission is to unite Oklahoma’s rare disease community, strengthen access to resources, and champion policies that improve the lives of individuals and families impacted by rare conditions.
Our Vision
A connected and empowered rare disease community where no Oklahoman faces their journey alone and a future where rare policies are a priority in our state.
