Care Navigation, Coordination & Support

Developed in collaboration with women with intellectual and developmental disabilities (IDD), healthcare professionals, and researchers, this guide provides accessible information to help women understand their health and advocate for their healthcare needs. Topics include preparing for medical appointments, reproductive health, preventive screenings, wellness, requesting accommodations, and communicating with healthcare providers.

Patient advocates have partnered with Citizen to bring you Ari, an AI-powered personal advocate designed for people living with rare diseases. Ari helps you securely access and manage your health data, supports day-to-day care, and offers the option to contribute anonymized data to advance rare disease research.Ari can also assist with symptom tracking, appointment preparation, insurance appeals, and school-related paperwork.

Free one-on-one guidance for people affected by rare or undiagnosed diseases, including help finding specialists, diagnosis resources, research opportunities, and community support.

Free one-on-one help for eligible patients and families facing access, insurance, disability, employment, or affordability barriers related to a serious health condition.

A hub for finding expert care, disease-specific information, patient assistance, insurance support, and practical resources for managing life with a rare disease.

Free educational materials about insurance, disability, medical costs, employment protections, and other practical issues that can affect access to care.

Provides supplemental nutrition support for eligible Oklahoma children from birth through age 17. Assistance is based on program eligibility criteria, and requests are reviewed on a case-by-case basis.

Information about a partnership offering access to genetic insights for eligible caregivers and families.

Support and educational opportunities for people living with chronic illness and their caregivers.

Evidence-informed information and expert guidance for families raising children with rare diseases and disabilities.

Information and support for families affected by undiagnosed and ultra-rare conditions.

Guidance and resources for families caring for children with serious medical conditions.

Tool for organizing and sharing a child's complex medical information with caregivers and care teams.

Information and support for families navigating neurological diagnoses, care, and services.

Education and guidance to help people understand genetics, genetic testing, and related decisions.

Support and resources for families navigating complex or previously undiagnosed conditions.